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Getting to grips with type 1 diabetes

The role of ‘parent’ is complex – and co-parenting with type 1 diabetes (T1D) often adds more to the mix. Especially when your child has just been diagnosed, there are many questions that need to be answered.

You may find the first couple of weeks are the worst as you come to terms with injecting insulin and pricking fingers to do blood checks. There’s a lot of information to take in about how to manage diabetes – counting carbohydrates, understanding the precautions to take when exercising, how to recognise and treat a hypo… the list goes on. We’ve created this guide to help you with these challenges.

Looking for more in-depth resources? Visit our guides and resources hub, or download our free guide for parents and carers supporting children with T1D.

Type 1 diabetes explained

T1D is a chronic autoimmune condition that can develop at any age. There is nothing anyone can do to prevent T1D, and right now there is no known cure.

Here are some helpful resources about T1D (also known as juvenile diabetes, type 1 diabetes mellitus or insulin-dependent diabetes).

What is T1D?

Learn more about this autoimmune condition in detail.

Bubbles in a pink and blue gradient theme

Stages of T1D

Understand how the condition progresses along 4 stages.

Stage 2

T1Dictionary

Get to know common words and terms used when talking about T1D.

man laying on bed reading his phone, looking serious

T1Directory

Find helpful organisations and resources, including T1D information in other languages.

young woman and her dad reading an e-tablet at a tablet

Managing type 1 diabetes

It’s a big change, but children with T1D can live long, full and happy lives. Advances in medication and technology make life easier, safer and better.

Managing T1D involves three main steps: checking blood glucose levels, administering insulin and counting carbohydrates.

Guide to T1D management and care

Find information on how to manage blood glucose levels, count carbs, and deal with hypos and hypers.

young girl testing her BGLs

About T1D treatment & technology

Understand the roles of insulin and blood glucose levels in your child's treatment plan.

insulin pump in a young boy's pocket, with a tube connecting the pump to an infusion set on his stomach

What to expect at different ages

Get insight into different developmental stages and to how to manage your own expectations of your child.

a young boy giving himself an injection into his stomach. A woman is guiding him

Help your child cope with injections and finger pricks

Here are our top tips for helping your little one to cope with injections and finger pricks.

a young girl checking her blood glucose with a finger prick check, helped by her mum

Your healthcare team and supplies

As a parent or carer, you need to manage your child’s T1D – but it certainly doesn’t mean you’re on your own. There are a number of healthcare professionals who can help you manage your child’s T1D and care for yourself.

T1D supplies: what to pack in your bag and store at home

It's important to have the right supplies on hand. Here are some tips to help you get organised.

a woman packing diabetes supplies, with a jar of jelly beans and sharps in the foreground

Your healthcare professionals

There are many healthcare professionals who can help you manage your child's T1D.

middle aged man getting a finger prick test by female nurse

Prescriptions and consumables: getting organised

Managing supplies is an important part of life with T1D. Here are some pointers to stay organised.

A woman is working at a pharmacy, looking at the shelves

About credentialled diabetes educators

CDEs can support and empower you to successfully manage your diabetes.

one person comfortingly clasps another person's hand

Emotional and mental health support

Finding the balance between supporting your mental health and your child’s T1D is something that may take time as you find your new rhythm, but you’ll get there. We have many resources to help.

Accessing mental health services

We shouldn’t overlook the emotional, social, and psychological ties T1D and mental health have to each other.

Two hands reaching toward each other, holding a small black paper heart.

Dealing with burnout


The day-to-day effort to manage T1D can become hard and frustrating. Here's how to get back on track.

An exhausted woman lays in bed, covering her face with her hands

Coping with your child’s T1D diagnosis

When you were told your child has T1D, you probably felt as if your world had been turned upside down. But it will get easier with time.

couple looking at a laptop while sitting in the couch, looking serious

Support for siblings of kids with T1D

Some kids will take their sibling's T1D diagnosis to heart, while others won't seem affected at all. Find support for you all.

a little boy on rollerskates is pushing a little girl on a trike

Find community and peer support

Access our private T1D Facebook groups, communities and peer support.

A young adult male and older lady with their arms around each other, smiling at the camera, wearing Breakthrough T1D shirts

Raising a teenager with type 1 diabetes

The teen years can be challenging, and adding T1D to the mix can cause extra stress for all. But remember – neither you or your child are alone. We have many resources to help support the whole family.

Free book: Teen Toolkit

Get your free guide for parents and carers of adolescents living with T1D, with loads of advice to help you all through the teen years.

teen toolkit

A wellbeing guide just for your teenager: Testing Times

Download a free copy for you, and get one sent to your teenager as well.

Testing Times book cover

Strengthening your connection with your teen

Get helpful advice on how to preserve – and even strengthen – your relationship with your teenager while balancing their T1D management.

teen girl with mum on the beach, both smiling. The mum has her arms around her daughter's shoulders

Disordered eating in teenagers with T1D

Learn the common signs you should be aware of, and what to do if you think your child is experiencing issues with food.

a teen boy covering his face with his hands, sitting against the wall on the floor

School, friendships and T1D: tips for parents of teens

Including close friends and a few teachers in their support network can have a hugely positive impact on teens with T1D.

a group of teens walking away from the camera, wearing backpacks

Supporting your teen through the challenges of T1D

Type 1 diabetes management in the teenage years can be especially demanding. Learn how you can support your teen.

teen boy and dad sitting on steps, smiling and talking

Your growing teen's appetite and T1D

Living with a ravenous teenager? It's all part of adolescence – but with T1D in the mix, it can help to be a bit prepared.

A teen boy making food in the kitchen with spreadable chocolate

Financial support

Most families who have a child diagnosed with T1D will experience an impact on their finances. Here’s some advice to help.

Financial impacts and assistance for T1D

Financial assistance is available in a variety of forms – get to know the impacts and support.

A man checks his finances on a laptop with his wife carry their child stands behind him.

Check your eligibility for the Insulin Pump Program

Find out whether you're eligible for equipment via the Insulin Pump Program and the steps involved for access.

Boy with pump

Staying healthy

Managing your child’s blood glucose levels, and working out how different foods and drinks affect their body, is often a parent or carer’s biggest role when managing T1D.

Thankfully, a wealth of resources exist to help you learn the ins and outs of staying healthy with T1D.

Food, nutrition and exercise

Learning about nutrition is an important part of managing your child's T1D and your overall health.

a variety of fruits, vegetables, grains and cereals

Counting carbs: FAQs for parents and carers

Get answers to common carb-counting questions, including fast- and slow-acting carbs, handy tools and tips on packing school lunches.

2 boys sitting at a table with plates of food in front of them. One of the boys is reaching for a bowl of food and smiling

Snack and lunch ideas for kids with T1D

Looking for snacks and meals to fill your child's lunchbox? Get some inspiration here.

A multicultural group of children eating lunch at a table, each holding a sandwich

Exercising with T1D

Find out why exercise is especially important for children with T1D, tips for dealing with high and low blood glucose levels, and advice on safely starting to exercise

happy child holding soccer ball

School and preschool

The thought of school or preschool may feel a little daunting following a T1D diagnosis, but you can ease into your new lifestyle.

School and T1D:
a helpful checklist

Whether your child is starting kindy or they’re further along their infant or primary school journey, being organised is the key to having a good school year. Here are a few things to consider.

5 children in school uniform sitting on a wall, photo is taken from chest down

Preschool and your child's T1D

Learn how you and your child's preschool or early learning centre can work together to keep your child safe and happy.

group of children smiling, wearing colourful clothes, in a daycare centre

Back to school with T1D

Heading into a new school year? Watch our video for lots of helpful tips on getting organised for school.

A group of kids in a classroom with their hands up. The focus is on 2 girls at the front

Everyday life

T1D shouldn’t get in the way of your child living their best life! Find advice on travel, parties and more.

Parties, special occasions and T1D

Find top tips for managing T1D around parties, celebrations and other special events, when usual routine is thrown out the window.

a group of kids at a party, wearing star-shaped sunglasses and using party blowers

T1D and travel: video and helpful tips

From cruises to the ski slopes, beach holidays to Disneyland, get tips and information to help you plan for your next family trip.

a bag packed for holidays, with sunglasses and shirts, and a map on the table.

Rufus, the Bear with Diabetes, and his free app

Our free app helps your child learn about life with T1D in a fun and entertaining way.

A boy holding a Rufus bear on his lap, and a phone that's showing him playing the Rufus app

Looking for more guidance on your child’s T1D diagnosis?

Free download

If You’re Okay, They’re Okay is your comprehensive guide especially for parents and carers of kids and teens living with type 1 diabetes. Written by healthcare professionals, this free book is packed with tips and advice to help you and your child live a safer, easier and happier life with T1D.

Book cover of 'If you're okay, they're okay'